One health care expert and prominent critic of DNA screening is Twila Brase, president of the Citizens' Council on Health Care
who has written a detailed analysis
(PDF) of the new law in which she warns that it represents the first program of populationwide genetic testing.
Brase states that S.1858 and H.R. 3825, the House version of the bill, will:
- Establish a national list of genetic conditions for which newborns and children are to be tested.
- Establish protocols for the linking and sharing of genetic test results nationwide.
- Build surveillance systems for tracking the health status and health outcomes of individuals diagnosed at birth with a genetic defect or trait.
- Use the newborn screening program as an opportunity for government agencies to identify, list, and study "secondary conditions" of individuals and their families.
- Subject citizens to genetic research without their knowledge or consent.
"Soon, under this bill, the DNA of all citizens will be housed in government genomic biobanks and considered governmental property for government research
," Brase writes
. "The DNA taken at birth from every citizen is essentially owned by the government, and every citizen becomes a potential subject of government-sponsored genetic research."